Location: Online (Zoom Link): https://us02web.zoom.us/j/85704439367pwd=REZkRThNc2RrY1BSWUJNTmc2NWQ5Zz09&from=addonPhysical Participation: Embassy of the United Republic of Tanzania - 1232 22nd St NW Washington, D.C. 20037
Registration for Participation (online-virtual/physical): https://scienceusafricaleaders.sched.com/signupContact DetailsISC in collaboration with the Muhimbili University of Health and Allied Sciences (MUHAS) - SickleInAfrica and the Tanzanian Embassy to the United States of America, will hold a scientific session to address Sickle Cell Disease (SCD). The session will build on the previous discussions during the December 2021 session on Tanzania-US Partnership for Health and Health Services and the Science Summit session during the United Nations General Assembly (UNGA) in September 2022. The session will focus on SCD (an inherited disease of the haemoglobin(Hb) molecule of the red blood cell) due to its high prevalence globally, with the highest burden in the African region. Significant novel preventive and therapeutic approaches are available. However, the African region with the highest burden has continued to be left behind. Key Objectives. The session will focus on
1. Partnerships in education and training to foster institutional collaborations that allow for basic and advanced training opportunities such as Postdoctoral fellowships and faculty exchanges.
2. Discuss the strategy for financing and investing in scientific research and the translation of discoveries to improve care for patients with SCD, focusing on advancing curative therapies like gene therapy and bone marrow transplantation.
3. Showcase the need for strengthening pre-existing manufacturing infrastructures in the continent and scaling up through meaningful collaborations in which complementary areas of expertise can be merged, resources combined, and risks shared to support sustainable local production of medicines such as Hydroxyurea.
4. Elucidate the critical role of politicians and policy-makers in developing and implementing policies to address SCD through sustainable strategies for prevention, diagnosis, and comprehensive and curative healthcare.
Target audienceMulti-disciplinary stakeholders are working to address SCD at country, regional, and global levels. Participants are anticipated to include scientists, patient advocates, healthcare providers, policy-makers and other government officials, researchers, Industry, NGOs, philanthropies, and multilateral health and research organizations.
AgendaTuesday, December 1308:30 – 12:30 EST Moderator, Nesia Mahenge09:00 - 09:15 am (EST) Opening Session - Welcome Remarks
- Prof. Appolinary KamuhabwaVice-Chancellorhancellor – Academic, Research and Consultancy (DVC-ARC), Muhimbili University of Health (MUHAS), Tanzania
- Official Opening Remarks
- Hon. Ummy Mwalimu, Minister, Ministry of Health, Tanzania
09:15 - 10:00 am (EST) Session 1: Strategic Global Partnership: - Topic: Partnership in Health, Research and Training to advance knowledge and care for SCD
- Speakers
- NIH Fogarty International Centre (TBC)
- Prof. Emmanuel Balandya, Director of Postgraduate Studies Muhimbili University of Health (MUHAS), Tanzania; Site Principal Investigator, SPARCO Tanzania
- Dr. Jonathan Spector, Head of Global Health Strategy and Access to Innovation; Novartis Institutes for Bio-medical Research
10:00 - 10:30 am Session 2: Enabling Environment- Topic: Inclusive Policies for SCD to reduce costs and support comprehensive patient care
- Speakers
- Prof. Paschal Rugajo, Director of Curative Services, Ministry of Health, Tanzania
- Prof. Lewis Hsu, Chief Medical Officer, Sickle Cell Disease Association, USA
- Arafa Salim, Executive Director, Sickle Cell Disease Patients Community, Tanzania
10:30 - 11:40 am (EST) Session 3: Sustainability- Topic: Financing and Investments in research to ensure sustainable advances in SCD
- Speakers
- Prof. Mohamed Janabi, Executive Director, Muhimbili National Hospital (MNH), Tanzania
- Dr. Gene Bukhman, Co-Chair, NCDI Poverty Network, Associate Professor of Medicine; and Global Health and Social Medicine, USA
- Prof. Julie Makani, Associate Professor, MUHAS; Principal Investigator, Sickle Cell Programme and SPARCO CCC, Tanzania
- Dr. Francis Collins, Former Director of The National Human Genome Research Institute (NHGRI), USA
11:40 am - 12:10 pm (EST) Session 4: Manufacturing in Africa- Topic: How to increase access and reduce financial costs for essential medicines and novel therapies, including gene and cell therapy?
- Speakers
- Dr. Grace Moshi, Senior Consultant, KK Women’s and Children’s Hospital, Singapore
- Dr. Cissy Kityo, Executive Director, Joint Clinical Research Centre, Uganda
- Dr. Rimas Orentas, Co-Founder and Board Chair; Scientific Director, Caring Cross, Inc. USA
12:10 - 12:30 pm (EST) Closing Session- Speakers
- NIH-NHLBI: SCD Network in Africa, CITRIS & Cure Sickle Cell Initiative (TBC)
- Prof. Olufunmilayo (Funmi) Olopade, Co-Chair, SickleInAfrica. USA
- Closing Remarks by H.E Ambassador, Prof. Kennedy G. Gastorn, Permanent Representative of the United Republic of Tanzania to the United Nations, New York, USA